My curse.
I don't think any other word would fit as well as that word, for Prurigo is indeed a curse to whomever has it.
Basically Prurigo is a skin disease, one that has no cure. It isn't fatal, It isn't contagious, it's simply ugly, irritating, annoying and hated.
The condition manifests itself in little very very itchy nodules on the skin, and the result is you can't help but scratching, which end up in bleeding nodules, scars, change of skin color etc.
I have Prurigo for as long as I can remember, 18 years for sure, and I bet even more. Only 2-3 years ago was my condition diagnosed, which means I went through life going from one doctor to the next, acting mostly as their guinea pig. I can't really blame them. They tried what they knew to help me. They just didn't know about Prurigo.
So why am I writing about it now? Cause I started a new treatment - phototherapy - which I'm hoping is going to help. I do see some improvement, but it's early days yet. Basically what this therapy means is exposure to specific wavelength of light for a certain amount of time, whuch increases every time I go to be treated.
If you want to read more about it here are some links (or you can use Google to search):
Prurigo Nodularis - http://en.wikipedia.org/wiki/Prurigo_nodularis
Phototherapy - http://en.wikipedia.org/wiki/Light_therapy
Wish me luck!
Showing posts with label disease. Show all posts
Showing posts with label disease. Show all posts
Monday, August 20, 2007
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