Monday, August 20, 2007

Prurigo Nodularis

My curse.

I don't think any other word would fit as well as that word, for Prurigo is indeed a curse to whomever has it.
Basically Prurigo is a skin disease, one that has no cure. It isn't fatal, It isn't contagious, it's simply ugly, irritating, annoying and hated.
The condition manifests itself in little very very itchy nodules on the skin, and the result is you can't help but scratching, which end up in bleeding nodules, scars, change of skin color etc.

I have Prurigo for as long as I can remember, 18 years for sure, and I bet even more. Only 2-3 years ago was my condition diagnosed, which means I went through life going from one doctor to the next, acting mostly as their guinea pig. I can't really blame them. They tried what they knew to help me. They just didn't know about Prurigo.

So why am I writing about it now? Cause I started a new treatment - phototherapy - which I'm hoping is going to help. I do see some improvement, but it's early days yet. Basically what this therapy means is exposure to specific wavelength of light for a certain amount of time, whuch increases every time I go to be treated.
If you want to read more about it here are some links (or you can use Google to search):
Prurigo Nodularis - http://en.wikipedia.org/wiki/Prurigo_nodularis
Phototherapy - http://en.wikipedia.org/wiki/Light_therapy

Wish me luck!

16 comments:

Alma7 said...

Good luck!
Are you going to take the phototherapy in Tel Hashomer?

Anonymous said...

hey, hope it's all going well. Have you heard of the benefits of capsicum and it's family( cayenne pepper etc.)?

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Anonymous said...

Hello lioness.. i suffer from the same disease for the past 20 years.. am too on phototherapy. My doc had put me on thalidomide for about an year and the results were dramatic. However, this cannot be administered on women of child bearing age as that may result in giving birth to deformed babies. I am off thalidomide for the past few months and slowly i could see the relapse.. yet, it is an amazing medicine and for some people it addresses the issue immediatley. You may want to check with your doc ..

M

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